Posted by: ltbeyer on: 22 October, 2009




I finished!
Official time: 13.1 miles in 2:22:44
Checking it off the life list…
Yes, I’ll do another one. I had a great time.
Posted by: ltbeyer on: 8 September, 2009
Great news for people with CF (and those for support CFF) came through last week, which I first saw on Twitter.
September 1, 2009
The U.S. Food and Drug Administration (FDA) has approved ZENPEP™ (pancrelipase), a pancreatic enzyme replacement therapy.Pancreatic enzymes are an essential treatment of cystic fibrosis. They help people with the disease absorb nutrients.
The FDA is requiring all pancreatic enzyme replacement products on the market to be reformulated and undergo clinical testing. ZENPEP, developed by Eurand, is the second enzyme therapy to be granted approval.
The new drug will be available for both adults and children ages 1 and up through various dosage strengths. This is important because CF is a chronic disease that affects babies from birth, so being able to treat infants s well as adults is a huge step for CF treatments. There still is no cure for CF, but advancements like this are the reason why thousands of people around the world work to raise awareness and money for the Cystic Fibrosis Foundation.
You can help me support the CF Foundation by making a donation to my Single Greatest Night Jacksonville page. Go to http://bit.ly/ltbeyer-cff to give $15 (or more) and be part of MY 100 challenge!
Posted by: ltbeyer on: 31 August, 2009
Posted by: ltbeyer on: 20 July, 2009
Update: Due to safety concerns about announcing where US Navy ships are in the world, I had to stop the countdown. But, thankfully, everyone returned home safely.
I’ve waited until this day is almost up, but figured this was too good for me to pass up the chance to do. For the 9th day left in the countdown, I present to you…Mike Modano Day.
Mike Modano is one of my favorite reasons to be a Dallas Stars fan, which I am now thanks to Garrett. I even went to two games this year (which is one more game than I saw of my own Trail Blazers!)

First Stars game - Dec 31, 2008

Stars at Tampa Bay - Jan '09
It’s getting close!
Posted by: ltbeyer on: 16 July, 2009
Single Greatest Night honorees got together for lunch yesterday (thanks Carabbas!) and we were joined by a couple of the team ambassadors, Zoe and Cammie. I should back up and tell you about how our teams are structured, and why. Each of us 40+ honorees are all divided between 4 different teams to provide help each other fundraise and provide a competitive incentive as we go through November. Each team is named after an child ambassador from Jacksonville with CF. I am a proud member of Team Zoe (and we’re the top fundraising team so far!).
Zoe is an adorable 5-year-old girl, the youngest of 8 kids. She was diagnosed with CF just before her first birthday, but you wouldn’t know it by meeting her. Zoe is a little shy, but she is very into princesses, Hello Kitty and most things pink. Zoe’s mom, Jada, is an avid blogger. She chronicles the family and Zoe’s journey with CF on the blog, Zoe for Life. (I’ve also added it to my blogroll if you want to check it out.)
It was great to sit down with other members of Team Zoe and meet Zoe, her brother Austin and their mom Jada over lunch. Zoe spent most of the lunch coloring in her Hello Kitty color book, but she did wow us with some Princess trivia (Who is the only princess to have 3 different names?) and gave us all purple bracelets that read “Cure Cystic Fibrosis.” Here are a few pictures we took with Zoe after lunch.

An almost smile from Zoe!

The CF bracelets Zoe gave us (and her own)

Zoe and her brother Austin
Meeting Zoe and her family gave me another unforgettable connection to CF. Lately my giving back efforts haven’t gone much further than running in a charity race, donating blood or giving money to a friend’s fundraising efforts…but getting involved with CFF and Single Greatest Night has been one of the best things I’ve done since I came to Jacksonville. It’s amazingly powerful to interact with kids like Zoe and be able to share their stories with all of you. Most of us take for granted the breaths we take, yet there are 30,000 children and adults in America who are fighting a disease that can make each breath a struggle. Next time you take a deep breath, I hope you think of Zoe and her fight.
To help my efforts to raise money for the Cystic Fibrosis Foundation, please consider donating by clicking here.
Posted by: ltbeyer on: 10 July, 2009
I tweeted yesterday’s countdown because I couldn’t get on the blog to post…

My favorite part of the night came later, when I got a phone call from my favorite “cute boy”.

So now the countdown is 19 (or 18 and a wake up, depending on who you ask)…and I’m getting even more excited. Today I got to peek into the homecoming of the USS Stennis (CVN-74) on Twitter and see pictures of the ship pulling in and sailors coming off, which did nothing to quell my excitment and daydreams of experiencing that myself very soon.
Day 19 is brought to you by the game Cribbage, in which a 19-point hand is impossible to achieve, and the singer Adele, who’s album ‘19′ includes one of my favorite songs (and my own dediciation back to G), To Make You Feel My Love. (video below)
Bonus: here’s the YouTube video of the Staind song G told me to listen to (couldn’t find the mp3 to post). Isn’t he sweet?
Posted by: ltbeyer on: 8 July, 2009
Today’s theme: 21st Century Breakdown — a nod to Green Day and the current times we live in. One of the single titles on GD’s new album is extremely appropriate after 23 weeks of waiting, don’t you think?
Green Day – “Restless Heart Syndrome” (click to listen)
And no, I didn’t forget to continue my countdown…I was just busy with lots of Single Greatest Night for Cystic Fibrosis stuff today. But I wasn’t too busy to keep thinking “only three weeks left” every five seconds throughout the day. Even when someone asked me, “how long until Garrett comes home?”, I answered with a big smile for the first time. What a change from a few weeks ago when I was telling myself that I could get through 8 more weeks alone. Now I’m counting the days to make sure I have enough time to get back to running, buy plane tickets for our trip home, get a haircut and a couple more girls nights in!
Posted by: ltbeyer on: 7 July, 2009
According to Wikipedia, the number 22 is significant to many in math, religion and sports (Clyde Drexler and Emmit Smith both wore #22). Today was significant as millions of people around the world watched Michael Jackson’s memorial service from LA. For me though, its just one (stormy) day closer to my guy coming home.
Today’s theme: Singing in the rain, MJ style…proof that you really can find anything on the internet.